A Day Out with My Brain

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To the trains!

Today was a most intrepid day. I had Bowen lady followed by a neurology appointment.

to the trains!

Ten came with me, because, you know, traveling. The first half of the day was easy enough, but by the time we’d done it all I needed serious supervision to get home.

I’d wondered what he was going to do for the hour I was having the Bowen treatment, but I needn’t have worried, he’d already hooked himself up for a hang out. Turns out he has a friend who runs an arty bookshop just round the corner. We were a bit early so I got to meet her. She was very nice and advised me about selling my signed Damien Hirst book, which might be worth a bob or two.

I’d thought we should eat in Bethnal Green, but I felt too nervous, and wanted to be as near the hospital as possible in case of EVENTS and being late and everything. I am hardly ever late for anything. I get too nervous. Then I am stupidly early and have to hang around.

So it was a happy thing that Ten remembered the cafe at the Mary Ward Centre, where I taught once upon a time, so we went there because it couldn’t really be nearer the hospital without sitting in it’s lap.

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This hospital is the National Hospital for Neurology and Neurosurgery so you’d think all the doctors there would be pretty fancy. But no! It turns out my doctor was “only” a neurologist, and I would have to go to the extra super fancy Headache Clinic there to get the botox, but get it I very well may – ON THE NHS  no less. And at £600 every three months to get it privately  it’s rather worth the wait to get it free. Eight months waiting list to see them, she reckoned. But she also told me some useful stuff to do in the meantime which would mean I wouldn’t have to mess around having more appointments than strictly necessary before getting the good stuff (assuming they see fit to give it me).

Whereas our good friend Giles Elrington at the National Migraine Clinic (very worth the name drop as it turns out) will give you botox, if he sees fit, whatever drugs you are taking, this clinic want you to be off as much as possible, and will even have you in to get you off your drugs, so assiduous are they.

remember giles? he does as he sees fit. you can tell, can’t you?

Now, it has never been suggested that I come off the preventative pain killer I take (naproxen) before, but this is what she says they would want me to do. She also said I should go up on my mood stabilizer – this being a project I had put on hold for the winter because every time I go up a dose I have at least a week of ricochet headaches before it settles down, possibly because it has an effect on hormones, so these may be ‘period migraines’ of sorts.

See, the migraine clinic is a private charity – hence the cost, and also hence I could get the botox treatment before it was available on the NHS in London. So what I am thinking is that if i get Dr Elrington to hit me up with the good shit for one more time then I can a) feel a bit better at a time of the year when I traditionally start going on the skids pain wise, and b) get a kick start on the drug withdrawl.

I have done drug withdrawl many times, and I do know not to go cold turkey, but even so, it’s a hard thing to do when not all your pain is rebound pain. Because, dur, you are going to have ALL THE PAIN and it will be bad and it will continue. So having something to leven that with will be most welcome and certainly worth £600.

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Addendum

Just as an aside, really, I have to tell you I was super nervous about seeing the neuro. Doctors have a lot of power, and I’d never met her before, so I was worried about that, and also because my brain isn’t what it might be, and because I have had this for so very long, I certainly can’t remember all the drugs I have tried. Anyway it was all fine, she was kind. And impressed with my name dropping (thanks, Giles, for being so very name droppable).

As we approached the hospital I started feeling a little hysterical. I started wanting to shout “TAKE MY BRAIN OUT!”

When we got to reception there was a man working there with a huge bulging forehead.

einstein’s brain. thank goodness someone had the foresight to steal it! (click through for more einstein’s brain goodness)

I found myself having a kind of tourettish urge to shout about his massive frontal lobe. My internal head shouting continued after that at various intervals (I never gave in to it – I have SUCH restraint) up to and including when the neuro lady said that under some circumstance or other I would have “less” headaches.

Gentle reader, it took all my strength not to shout “FEWER”.

Dream House, Swans as Pets, and My Current Wants

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Friday, November 16, 2012

Would you buy your dream house if the price was right BUT you also were told it was inhabited by ghosts?

Absobloodylutely! Unless it had the bad feng shui, but then it wouldn’t be my dream house, would it? I’d like a space with lots of south facing windows, lots of heat and light. Low windows, reading nooks with the little day beddy thing in. Fireplaces and stoves. French windows – lots of french windows. Small rooms, big rooms. Rooms with connecting bathrooms, a walk in wardrobe, comfy furniture, space for making art, great views, animals outside and in. Plenty guest rooms, a music room, a viewing room. A room with a huge table and chairs all round for eating and for late night conversations. The forest, the sea side, crashing rock, soft sand… To get this kind of thing at my price, there’s pretty much have to be some deal breaking ghosts on my side.

Oh! And a swimming pool.

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Since today I am soooooooooooooooooooooooooooooooooooooo tired after Bowen, I’m going to cheat the rest of this post. But i will provide quality padding. These photos, for instance;

Quite simply ganked from tumblr wholesale, with the following caption;

A pet swan named Leila being helped into a car where it enjoys a ride to the shops. Its owner Mrs. Watson of Chesham, Buckinghamshire, says that Leila, who has been a family pet for two years, can open doors and is a good guard dog, England, 1936 *

photo by William Vanderson.

What I can add to the party is that Anna Pavlova had a pet swan, Jack. There is no record of whether she took him car rides, though. I doubt it. Taking your swan to the shops seems rather an English thing to do. I cannot imagine Anna Pavlova being that parochial. I could see her taking him somewhere fancy, though.

***

So, my apologies for being a bit *thin* (on paper, if not in life) today. I am quite borked. For some reason I seem to be in rather an acquisitive mood, though. I have been researching the Panache sports bra on the recommendation of my friend @Mockduck who runs. I don’t need ‘sports’ as such but I could use a softish non fancy bra that you don’t have to struggle to get into – and not only does this have back fasteners, but it has a fancy adaptor so you can wear it either scoop or sport back. AND IT COMES IN PINK. yasss! 

The other thing I find myself in lust with is the new Kobo Mini eReader, which is authentically pocketable, not tied to a particular seller (I’m looking at you, Amazon, you conniving greedyguts) and is available for £50. Although I tend to listen to audio books, my eyes are not as bad as they were since I came off Duloxetine, and I have enjoyed reading books when I have been away from home (and for home, read THE INTERNET). Although it was possible to go online the last couple of times I went away, I chose not to take this life with me, but to have a ‘real’ holiday (with small borrows just to check in).

Anyway, I’m not for jumping the gun right now. Tonight is all about chillin’ with my dawgie and watching bits of telly, playing Words With Friends, and listening to radio plays.

Happy rest of friday to you,

e4q

x