Eye Eye!

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Forgive me, readers, it has been some time since my last confession. If you are friended to me on the face book you will know that I have been moving house and beetling up and down to Brighton, to boot. And that I have had horrible deprivations on the broadband front. I’m still tethering, here, so bear with.

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I’ve moved to Old Street, just round the back of the eye hospital.

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And just round the corner from the Ironmonger Row swimming baths. I haven’t gone yet, but I’ve taken the precaution of buying a voluminous swimming costume so as not to frighten people.

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This isn’t really the East End as such, but it is safely back in the warm embrace of Arsenal. Even though I don’t give a rat’s ass for the footie, it was still odd being in the realm of Spurs. Why should it matter? It doesn’t. It doesn’t matter.

Still.

Even so.

So I decided that I was going to style myself as being ‘in the eye of the storm’ being the still point that I am, and living round the corner from the eye hospital and it’s lovely bonkers clock, and on my way to photograph it I saw this monster of a building.

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I wouldn’t mind, apart from the general fright it gave me, but it turns out this is the children’s eye hospital! A whole façade dedicated to the sort of thing that could put your eye out. THE TRAUMA. And it isn’t even right next to a psych wing.

This deserves a lot more time than I’ve got right now. Because YOU KNOW HOW BUSY I AM! Anyway, I’m not busy, but I am knackered, so. As you might imagine a few people took photos at End Of. and this is a snippet of Alison Moyet!

Alison. Moyet. YO!

It may be Messy but I do it all for You

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Made a little tumblr for ya, on elaine4queen.tumblr.com/day/2014/01/18

And I’ve been updating the Mnemonic Mujer blog weekly, although it took a couple of go rounds to get it set for GMT, but I’ve done it now, and the next one will be Monday at 11.11am. Most pleasing.

AND, and, I have made a MM tumblr to complement the main blog. The blog posts are featured, but there will also be extras, and you can follow either or both or neither or whatever you damn well please. Both this blog and the wordpress MM blog are going through to the elaine4queen facebook page. And twitter. There are tweets. I have it mostly covered, but there is always room for improvement. My online presence is frankly messy.

A Woman of a Certain Rage

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So much to tell you. Not that anything has happened in ‘real life’, since now is very much the winter of my discontent, as it is every year for about 9 months. This needs to be addressed at some point, it’s just not sustainable. But it can’t happen this year, I just have to stay where I am and tough it out. Ill as I am right now, I’m not as bad as I have been, and as I am, here, in my pain and unending uselessness, it amazes me I have survived it at all, year on year on year.

Whatever has happened lately has been what’s happened online.  Over on facebook I’ve become involved in a fundraising event, and made a tumblr site End Of. There’s going to be a proper website very soon, but I got the tumblr up and running within four days of the original idea, and while it is, as Terri might say, ‘quick and dirty’ people seem to like it, and it’s somewhere to collate stuff and put info for the meantime. On the facebook page I got trolled by someone who said tumblr was the Betamax of the online world. I suddenly felt terribly protective of tumblr! Poor tumblr, what have they ever done wrong?

I made this to prompt someone else into doing a ‘proper’ design, or just inspire people to make their own and share pictures of them ‘in the wild’. Only afterwards did I realise I’d done the graphic on a ‘wife beater’.

Anyway, I had to stop engaging with the crazy because s/he was clearly only going to feed off any responses. In a discussion afterwards I was describing myself as a ‘woman of a certain age’ to someone else on the team, and NEARLY wrote RAGE instead.

While I find it fairly easy not to get involved in other people’s anger issues, I’ve got my own to deal with. Again, sort of IRL and sort of not… almost from the get-go anger has been a major topic in my therapy. I say I am irritated by someone, therapist suggests I am angry. I wonder if it can be true that I am so out of touch with my feelings I need someone else to tell me what they are?

In other news, Hyperbole and a Half has been so quiet not because she’s been in a depressive impasse but because she’s been writing & drawing a book. I stupidly got my mum an e-reader last year and I’ve cut off my nose to spite my face because books were the obvious and usual gift idea for her, easy and appreciated. Now she’s gone all virtual it’s really hard to think of what to get her, so this was great festive timing on the part of H&1/2 because it’s a book you could only enjoy on an e-reader if you had full colour. And another good thing is that since my mum is phobic about the internet it will come as an entirely new thing to her. (Though, as well as favourites from her blog, there are new stories as well, so us devotees have something to read before we pack them up as Xmas presents).

Actressy friend, Clare Cathcart is going to be in this play which is so exciting. It’s on for ages and it’s in London so I can probably go to see it, even though there aren’t matinees, so I will have to time myself well to manage it, AND it’s been directed by Kathy Burke who is a total genius. I miss her being on telly, but she says she likes directing better, which is fair enough.

Mind you, my friend Ian is having a house warming tonight, and I’m blogging right now to distract myself from quite severe pain, so even though it’s quite near and I really want to go, the chances are against it.

Again. Need to get myself out of this country for these months in the future.

MASSIVE EFFING BORKDOM.

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Quickly, before I go, here’s a tumblr collection I made the other day for you elaine4queen.tumblr.com/day/2013/10/30

Il cane innocente, Il giovane Montalbano, e mi sento male

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In ‘my life as a Hanna Barbera cartoon, the dog known as Ms Roberta “Poppet” Bobs stole my sausages the other day while I was answering the door.

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Other dogs have a good line in looking guilty even if it’s just that they are skilled actors, but Pops just looked at the plate in my hand, hypnotised by her own pleasure, while I was telling her off, transparently thinking “Those were good, are there any more?”

She understands when it is in her interest to do so. Ten used to talk about perambulating the animal, but I think she’s sussed that one out, so it’s lucky I’ve become entrenched in The Young Montalbano so now we have a spot of Italian to spice up our linguistic feints.

I have tried watching Montalbano before, with The Snack Thief which I found slow and boring, and not about sausages at all. Whether it is the young handsome actor in the prequel or to do with the writing or the directing I don’t know, but whatever the reason or cunning combination thereof, I am really enjoying this series. I now believe I should be living in Sicily, and a quick glance at the weather forecasts tell me that I am right.

What is less appealing is that the town which plays Vigàta is apparently notorious for crimes against dogs, and for there being a lot of street dogs, for want of a pound. I saw a picture when I looked it up for daydreaming purposes which would curdle your blood. So, mixed reviews, there.

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In other not unrelated news, I have been abed for a lot of the week. Ten’s been away so I’ve had to do what I’ve had to do, but I’ve rather run aground and today he is doing everything and I am most grateful. While I am unfaithful to him with Salvo he is dealing with the piccolo cane and the shopping and so on. I am so very sluggish and have been absolutely tanking the triptans. I only hope that today’s turn of the full moon sees off this current malaise, because I’m at a terribly low ebb, unable to get on with the writing project, and generally feeling crappy. So, sorry for lack of posts, but this is the reality of life in the hermitage right now.

What is nice is that Ellis has invited me to Have A Word again in March. Lets hope that I am well enough to write something by then… There’s another thing on, in April, again in Brighton, which is probably going to be called END OF, perhaps with some other words appended. It was only cooked up a couple of nights ago by Julie Burchill, and is going to be a fund raiser for a domestic violence charity. The spots are only 3-5 minutes, and I think perhaps it’s not for me, but I am glad to be in on it, it’s a great project. However, I also intend to get up to Scotland in the in just springtime, and I dare say I will need to be realistic about the wellness to travel ratio that I can cope with outside of the high days of June – August. I really do need to work out how to get somewhere warmer for a bit.

Six Sleeps til Have A Word

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So here we go to Have A Word. The event organizer, Ellis, was kind enough to describe me as a “Comedian” on the poster. And the flyer. And probably on the radio show he was on today… so lets hope that people don’t remember that before I take the stage, because NO PRESSURE to be FUNNY then!

 

Having a Word – OK, Don’t mind if I do!

I remain convinced that he has done this to get me back for threatening to everyone about a boring story he told me about ironing a shirt. He has no idea of my horrible history of outing people… still, best not to spoil the surprise.

I have this feeling as if I’ve blogged all this before, but probably I’ve mainly talked to you a) in my head or b) on facebook, and of course, although originally I was down for October, Ellis asked me to do September instead, so I said yes, and then it was cancelled, so then I was back on for October. And yet, in an astounding feat of procrastination I have still managed to not finish it yet. Six sleeps…

Anyway, I am grateful. Ellis is the sort of person who has an idea and then ‘just’ does it. And I, for my part, am the sort of person to say, once that person has done a lot of hard work and it has proven a success “Ooh! Can I join in?”

Hence we are at this pretty pass. As it happens, I’ve done this sort of thing before, but it’s been a good 10 years since the last iteration. Since then I’ve listened to a LOT of Radio 4 and when Ellis said he wanted 15 minutes I didn’t even consider doing some shorter things or a thing of whatever shorter length and then just stopping – I wanted to talk to time. This is proving an interesting exercise, and I am actually nearly done. Do you want to read the opening? Here it is;

Cayce, I wish my ailments, like yours, were a kind of superpower. Your allergy is the BEST allergy. People pay good money to go to design school to refine their eye and learn visual skills. You are employed because when you see a new packaging design you know whether it’s good or not. Not because you have an ‘eye’ but because you are allergic.

Cayce is allergic to branding. This means that she has an unpleasant physical reaction to the sight of logos, so she has filed the logo off the button on her jeans and unpicked the labels. The stronger the logo, the stronger her repulsion.

Cayce is a “cool hunter”. This already sounds old fashioned in 2013, ten years after the publication of the novel, which, given it’s set in ‘the future’ might sound problematic, but sci fi writers, like all successful novelists, have rules, some genre specific, and some more general about what ‘can’ happen in a given scenario. ‘Cool hunter’ has been around for some time before he writes – the ‘coolness of ‘cool hunter’ is a kind of linguistic branding.

And this is nearly the end of me ever mentioning Pattern Recognition by William Gibson again. I go off on a noodly jazz style riff about the blackberry season and my own relationship to fashion. The idea is that it all hangs together MARVELOUSLY. But I may have to wait and see if it does. Particularly since I’m clearly not writing it NOW am I? No, after not blogging for ages, suddenly it’s vitally important I stop watching TV, listening to radio, playing Words With Friends, and all the other activities and tasks I seem to be getting done at an amazing rate and blog instead of WRITING THE THING. Typical.

30 Things Meme – Invisible Illness Week (Small Life)

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It’s coming up to Invisible Illness Week so here’s my response to the 30 things questionnaire you just clicked through to (well, if you didn’t it’s there anyway, just like the tree that fell in the forest).

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1. The illness I live with is: fibromyalgia and chronic migraine. Some say chicken, some say egg, either way, it’s bodily pain, exhaustion, insomnia, anxiety and severe headaches, lots and lots of headaches.

2. I was diagnosed with it in the year: Not sure. about 8 years ago. Never sure about dates and things. I am supposed to keep a record of all sorts of things, but in reality I am too ill to manage that sort of paperwork.

3. But I had symptoms since: Probably birth. Colic is now seen as a precursor of and a kind of migraine, ‘growing pains’ are now seen as a sign of fibromyalgia. I also suffered headaches as a kid, was put to bed with an asprin and dismissed as ‘attention seeking’. If pain really got you attention, I think I’d have noticed by now, and from my pre-crash experience (about 10 years ago now) I know that there are better and more effective ways to get noticed.

4. The biggest adjustment I’ve had to make is: Having very few choices about anything – from what to eat to where I can go or what I can wear or who I can spend time with. At the moment I am struggling with the fact that I can’t, and haven’t been able to for some time, decorate my home or even put pictures up.

5. Most people assume: I’m ok, I suppose. And that nothing they can do can help and that whatever I am doing is what I want to be doing, and however I have things or do things is how I want them. I remember a visitor being surprised at how few pictures I had up. Rather than ask me why, as a formerly active visual artist and someone who has a huge collection of images in frames, I might not have them on walls, she regaled me with tales of her own decor preferences and activities.

6. The hardest part about mornings are: Mornings are the best time of the day for me but I know that all the spoons will be used up by the time I have eaten and bathed, and if I do do something, go to an appointment, do a task, then I will be paying not just the rest of that day but for several days hence. So I suppose the hardest thing about mornings is knowing that even if I feel okay for a little while it won’t be for long, and I have to get through the day somehow  – and having done so I won’t be any further forward with anything.

7. My favorite medical TV show is: None. I don’t like medical shows. People may think that I am interested in ailments, I’m not. I like murders and comedies.

8. A gadget I couldn’t live without is: My heated blanket.

9. The hardest part about nights are: That if I am awake I will be in pain, and that the night will feel even more endless than the day.

10. Each day I take _approx 10 pills & vitamins. (No comments, please)

11. Regarding alternative treatments I: have tried a lot of things. I always listen when people tell me about treatments, because sometimes there might be something that actually helps, but mostly I just feel even more misunderstood and isolated – going to appointments of any sort involves travel and probably being extra ill for several days afterwards, and alternative treatments are costly too, so unless you are going to drive me to the appointment every week and pay for it too, then probably save your breath.

12. If I had to choose between an invisible illness or visible I would choose: Visible. I’d like to have Stigmata, something nice and visual. I used to get nose bleeds a lot, and the level of sympathy was off the scale – DUDES!  Nosebleeds don’t actually hurt!

13. Regarding working and career: I miss working, and I miss financial independence. I miss creating something in the world. I miss the social contact. I miss being an expert at something. I miss having a vocation, an actual reason to get out of bed in the morning.

14. People would be surprised to know: How angry and upset I get – I feel I daren’t express myself a lot of the time, I have few enough friends as it is without alienating them. I know it’s not anyone’s fault that I am unwell, but I do feel like I have to be on my best behaviour all the time – I even try to be bright and breezy on the internet for fear of bumming people out. I only write as much misery as I dare, but I feel much more. And that sense of having to be well behaved is a bit of a burden. Sometimes I do write ‘I feel crap’ on facebook, and I love it that people ‘like’ or say ‘aw’ – it’s amazing how much that helps.

15. The hardest thing to accept about my new reality has been: How little it really matters, and how little there is I can do about it.

16. Something I never thought I could do with my illness that I did was: be of any use to anyone else ever. I love it when I can help someone with something. Especially when it involves something I know or am good at and can still do (not much, admittedly).

17. The commercials about my illness: don’t exist in the UK, thankfully.  I remember saying to a psychiatrist ‘will I be able to do that yoga pose if I take that drug’ – the ad was on the side of a tissue box. What rot. I imagine drug commercials are a lot like sanitary products ads, full of people who are busy doing cartwheels on the beach. I’m glad I am spared seeing them. Mind you, the anger might be quite aerobic.

18. Something I really miss doing since I was diagnosed is: Making plans that have any chance of coming to fruition.

19. It was really hard to have to give up: yoga.

20. A new hobby I have taken up since my diagnosis is: blogging. It can be done from bed, it can be any length, and it needn’t be done at all. No one is let down if I don’t blog for weeks. It doesn’t take materials or much in the way of physical action, all I have to be well enough for to do it is to handle the screen time and string a sentence together, and even then I don’t have to do it all at once.

21. If I could have one day of feeling normal again I would: go swimming.

22. My illness has taught me: compassion.

23. Want to know a secret? One thing people say that gets under my skin is: “Why don’t you get a taxi?” I have never been a big fan of taxi rides, the converations are tiring, and even being in a car in silence with someone I don’t know is tiring. They are too expensive, and they WILL give me travel sickness. If I am not going somewhere because it’s ‘too far’ I’ve already weighed up the logistics.

24. But I love it when people: find a way to include me.

25. My favorite motto, scripture, quote that gets me through tough times is: There isn’t one. No platitude from any quarter can help. Ten and Poppet and the internet people, they help, but sayings and quotes just piss me off.

26. When someone is diagnosed I’d like to tell them: you are entitled to your feelings.  

27. Something that has surprised me about living with an illness is: “I never imagined that so many days would ultimately  make such a small life.”
— Franz Kafka, from “Diaries”

28. The nicest thing someone did for me when I wasn’t feeling well was: Be there. Also, it’s helpful when someone offers me something specific – when you are in pain and maybe your brain isn’t functioning the last thing you want to do is guess what someone is prepared to do for you. Ask “Do you want a cheese sandwich” not “Is there anything I can do for you?” because there is, but I’ll be damned if I can think what it might be, right now even if I am lying here starving.

29. I’m involved with Invisible Illness Week because: Honestly, if I don’t do it no one else is going to do it for me. I am constantly supporting causes, even if it’s only ‘clicktivism’. What is horrible is that even high profile illnesses and disabilities don’t get the kind of support or research they need. Watching Pink Ribbon Inc shows how big companies and individuals spend so much money and effort fundraising without actually helping anyone. 

If a cause like that fails so resolutely, what chance is there for mine?

30. The fact that you read this list makes me feel: perhaps all is not lost. If you did get this far, thank you so much for caring to. I feel like I should apologize for having wasted ten minutes of your time. If you did make it this far, here’s a little tumblr for your trouble – THANK YOU! elaine4queen.tumblr.com/day/2013/8/25

 

Doormat Redux

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A propos of I Am Not a Doormat (my previous post) I just thought I’d share with you what happens when a wordpress post’s first picture gets reblogged on tumblr. Before anything else, let me tell you that if you click on these three images you will go to the reblogger’s page… and some of that shit is NSFW and I’m really not kidding. So, despite Yahoo’s policies, don’t assume tumblr has gone all Pinterest, because it hasn’t.

So the thing is that when I hit ‘publish’ on WP all sorts of magic happens. I get an auto generated tweet, elaine4queen on Facebook goes into action, and I get *something* on tumblr. It looks like this when it comes into your dashboard (reading page) and not much different when it pitches up in my tumblr, because I have a ‘one at a time’ kind of theme – which, if you ever click through to my ‘collections’ you’ll know about because you’ll have scrolled to see pictures much as I do on my dashboard, one at a time.

 

This is not always the case. I don’t make a massive effort to get reblogged, I virtually never post pictures I have taken unless they happen to be the first image in a WP blog post. And even then, that’s not my choice, it’s just how tumblr metabolizes what it gets – shows the first pic, a few words, and some tags.

When I am scrolling through my dashboard I see when someone has reblogged something, and often click through to see what company the image is now keeping. A lot of  the time it’s a picture of Poppet keeping company with other dogs. Here’s what Angie’s “I AM NOT A DOORMAT” is rubbing shoulders with this week.

 

sex, music, violence

politics, poetry, emo

smoking, drinking, emo

More when I have a brain cell. OH WAIT! I’ve been having a bit of fun on fb this morning with 7 Ways to be Insufferable on Facebook which I can recommend as a funny read.